Dad was diagnosed with cancer in October of 2007, just months after my
wedding, when it had seemed as if there couldn't be a cloud in the sky.
It started with dad's complaint of frequent urination. When he went to the
local micro-lab to investigate the cause, we all thought it may be a urinary
infection, as that's usually one of the common symptoms. The lab results came
out negative, but a PSA test was suggested. PSA, (a term we later became very
familiar with) is short for Prostate-Specific Antigen. PSA is present in small
quantities in the serum of men with healthy prostates, but is often elevated in
the presence of prostate cancer and in other prostate disorders.
The test results showed 50, which was not good. The next step was consulting
a urologist. But it still hadn’t dawned on us that it could be something
serious. Dad’s visit to PSG Tech, to meet with the resident head of urolology
was a black one. He said that this usually was the first sign of prostrate
cancer, and asked dad to go in for a biopsy. We were still pretty optimistic,
blissfully oblivious to the horrors of cancer. Dad called our close relatives
and narrated the news. They were all quite apprehensive on hearing it. The day
of the biopsy results, I was at work. I was pretty keyed up and anxious, but I
had a sweet box ready, because I’d prayed and fasted that day, and I remember
thinking, ‘Surely, this could not happen to us. Surely, the Lord won’t allow
it. Hasn’t He sworn to protect us in Psalm 91? – “A thousand shall fall at thy side, and ten thousand at thy right hand;
but it shall not come nigh thee.” No, this was just a mix up, it could be
something else, not cancer.’
And then the dreaded phone call which never came…. That itself was not a
good sign, like the jury taking a long time to decide the verdict at a high
profile trial. I remember dialing dad’s number with trembling fingers, bravely
plastering a smile on my face to ward off the anxiety, the sinking feeling in
the pit of my stomach, that something was really wrong. And then, I heard his
voice – my life’s pillar, saying,
‘Yes ba, its cancer. The doctor confirmed it….Yes mom is upset, I’m upset
too naturally, but we’re all in God’s hands. Let’s just commit it to the Lord,
and leave it there. He knows what’s best for each of us. Let’s see what can be
done next….You need not worry ba. Come home and we’ll talk.’
That’s the way he responded to everything, all the trials, the faceless
monsters that attacked him in life – like a rock- silent, unmoving, calm, yet
steadfast. I can still feel the tears roll down my numb cheeks that day, the
terror that held my hand in its cold fist. ‘Dad has cancer. Dad has cancer, Oh
God, Oh God, Oh God!’
That day the house was silent. We all sat around in the family room and
prayed, with tears, with hearts full of unanswerable questions, with dim faith.
Then came the slew of phone calls from relatives and friends, the explanations,
the well meant advice, the exclamations of sorrow that did nothing to calm us
or alleviate our fears, but rather confirmed them.
The next thing we did was visit a well-known urologist in Coimbatore. The
uro-surgeon there flatly suggested surgery. A prostectomy, or surgical removal
of the prostrate gland was ruled out, as the tumor was too largely spread
within the prostrate gland to guarantee its safe removal. Instead, an orchiectomy
(removal of the testicles) was suggested. Prostrate tumors feed on testosterone
produced in and circulating from the testicles and the pituitary gland. The
easier the availability of testosterone, the faster the tumor grows, the
farther it can reach. Thus, eliminating the source of the tumor’s nutrition is
like eradicating the tumor itself. Without its source of nourishment, much like
any other parasite, the cancer cells ultimately shrivel up and die. Sounds like
the perfect solution, doesn’t it? But there were risks involved.
We met the resident Chief of Urology, who gave us to understand, that
surgery did indeed present certain risks, kidney infection, recurring urinary tract
infections, this besides the hospital stay, the inevitable medication that
followed, the pain after surgery, and accompanying psychological disturbances
and changes. Other side effects were hot flashes, osteoporosis and breast
enlargement. Sort of puts a damper on the picture, doesn’t it? Of course, all
this does not guarantee that the cancer will indeed die. In some cases, it
does, but in other cases, the cancer cells morph or mutate to adjust to some
other food source within the body if deprived of testosterone. And if the
cancer cells have already spread to the bone tissue, then surgery is wasteful,
and ultimately of no use.
‘What are the other options?’ We asked, and were told of LH-RH or hormone
therapy, otherwise referred to as ‘medical castration’. It involved depriving
the cancer of testosterone by controlling testosterone production, with the injection
of a hormone named Lupride Depot into the blood. It did not present as many
risks as surgery did, but was expensive; and it also, did not promise a cure. ‘What
are the side effects?’, we asked. Emotional disturbances, depression, breast
enlargement, and pain, it depends from person to person…we were told.
Then it came down to net research. Dad and I would go through the net,
blogs, medical research sites, etc. We read about many cases in which orchiectomy
was associated with incontinence, and in some cases, mental degradation. Also,
our research on hormone therapy revealed some alarming finds. Many claimed that
they had reactions such as violent emotional behavior and adopting feminine
characteristics.
It was a case of doomed if you do, and doomed if you don’t.
‘How long do we
have to decide?’, we asked.
One doctor said, ‘You have to act now!’
Another
said, “The sooner you act the better.”
Yet another said, “take your time and
decide coolly.”
Dad’s case was further complicated by a hernia in the prostrate region,
which had resulted in the gland swelling up. It gave him occasional discomfort,
but no pain as such. But surgery was still a risk, as there was a chance of the
cancer entering other tissues during the procedure.
It was like a bad dream that you hope to wake up from, but can’t. We
usually hear about stuff like this on Oprah, or read about it in the paper, or
hear about it from friends who know someone who knew someone who had it. But we
never dream that it can come to us – this silent predator, the greatest killer
the world has seen – ‘cancer’.
For a while, I think we all lived in denial. It was sort of a defense
against the utter helplessness, the unpredictability of it all. Like ostriches,
we buried out heads in the sand. We talked with dad about hormone therapy, but
he was against it. “I’ll handle it. I’ll cross that bridge when I come to it.”,
he said. And surgery was a complete ‘no’. “I don’t want a knife to touch this
body. If I have to go, I’ll go in one piece, as I am now.”, he said.
Dad loved life, and lived it to its fullest, each moment, each day. But in all
his life, even with trials and difficulties beating him down, staring him in
the face, or even dancing on his head at times, he never had abandoned his
faith in God. He always said, “Why do people make God the last resort? Why
can’t they go to him first?”
Chemotherapy, both oral and NS was ruled out, as one of the compounds in chemotherapy was a steroid, and dad was steroid intolerant. Plus chemotherapy was usually recommended in those cases where the cancer had entered the blood stream or body organs. So dad opted for a suppressant drug. The doctors suggested hormone therapy in time.
Mom and dad were due a trip to Mumbai and Delhi. They decided to start
therapy when they returned. A couple of months later, the cancer monster was
like an underlying nightmare, like mice in the house which you can hear but
can’t catch, or termites in the wall, that you don’t exterminate because you
don’t see them until after they’ve holed up in some comfy part of the home and
tunneled through all the wood surrounding it to get there.
Dad checked his PSA regularly. If it stayed below a certain point, the
doctor had said it was ok. A lot of things transpired in the meanwhile. We
shifted houses, my husband Shadrach and I got a separate rental place,
adjoining mom and dad’s; Shadrach’s grandmother’s sister, also ill with cancer
came to live with us; we went on tour, I had a miscarriage, and the list goes
on of course. It was an eventful and stressful year.
When dad and mom had returned from their trip to the North, dad had gone in
for a bone scan, which sadly revealed that the disease had already progressed
and entered the bone tissue. The doctor said that since the cancer had already been in Stage III during the initial detection, it would already have been present in the bone. This then meant, that any other course of action
to be taken could not cure him or better him, but only prolong his life.
Over the year, dad had tried alternative therapy – homeopathic medicine and
naturo-therapy, like eating herbs, fruits, and vegetables that help the
increase of anti-cancer immuno genes in the body. He also took a daily dose of
wheat grass, which is a proven immuno drug. Beside this, dad had abstained from
foods which aggravated the carcinogenic elements in his body; All this and
ceaseless prayer. There were people that had been cured in this way. Dad was not
one of them though. That's just the kind of karma life throws our way.
It was when I recovered from the trauma of my miscarriage, in the February
of 2009, that I began noticing how thin dad had become. How worn, and drawn,
and dissipated he looked. A friend of mine had come over for a visit. I brought
her over to see dad, and that was when he broke down for the first time.
“The
pain used to come and go,” he said, “but it doesn’t go anymore ba.”
It had started with not being able to climb into the bus. Dad came home one
day and said his hip hurt. We took an X-ray and a fracture was ruled out.
“It
could be a muscular catch”, the doctor had said, “put a hot water compress on
it, and it’ll be ok.”
And it did. The pain went away. But dad never rode the
bus after that.
The next thing was being unable to straddle the bike. So dad, began sitting
side seated. After a while, he wasn’t able to board a bike. And we had to go around
in autos or taxis.
Then, he felt tired when walking long distances, and dad loved to walk.
This was a great strike on his self esteem – his not being able to walk all he
wanted. We regulated his walks to certain distances in the vicinity of our
home. He seemed content with this, content that he was allowed even this much in his condition.
Next, he found it hard climbing steps. Our terrace was off limits for dad.
And even the 2 steps in front of the house were maneouvered with great
difficulty.
Dad began staying indoors more. He read the paper by sunlight on the porch,
and seemed to enjoy the sun on his back. It soothed the pain some, he said. I’d
take him out to stand on the construction sand in front of the house when the
sun was high.
‘It felt good’, he said, ‘tingly’.
It was heart wrenching to watch him limiting himself. He had always been an
active man, over-active almost. He was used to getting things done fast, and it
irked him when others were slow and inefficient. He was usually irritated when
things didn’t get done on time. And the pain contributed to his anger.
It worsened. He began getting catches in his legs. Mom would stay awake and
massage him, when the spasms came. She gave him hot water bags for the pain,
and I could always smell liniment or tiger balm in his room. The pain increased
gradually, and then the spasms reached his back. He couldn’t get up in the
morning. He would try, slowly rise, and then get thrown back on the bed, crying
in pain, as he fell. Mom was always watchful. She would reach out to him and
comfort him, and help him get out of bed each day.
For a while, he refused support, and then inevitably he had to give in.
This strong independent man had to relinquish his independence, his dignity,
his self esteem, in the face of the cancer demon. But he comforted himself
saying that many people did not even have others to lean on, no one to depend
on. But he had us, and for that he was grateful, and he told us that everyday.
I found myself staying at home more. I wanted to be with dad, share in his
pain, his grief. Taking care of him became a redeeming service. It helped me
deal with my own grief of losing a child, of losing a hope. And so, I’d be
there in the morning to help him get up, to help him wash and bathe, to make
his cup of tea, fetch him the paper, share the latest neighborhood gossip with
him.
Mom was trying to deal with accepting his condition. It hurt her to see him
in pain, and she grew withdrawn and depressed. I hoped my being there to help
made a difference to her, and gave her some time to adjust to the situation.
When the pain became too much, our local doctor suggested meeting a renown
oncologist at Ramkrishna hospital in Coimbatore. And so we went to see him. By
this time, dad was in tears each time he was asked to lie down and get up
again. The hospital visit commanded scans, X-rays, and a whole gamut of blood
tests. We stood around killing time, with anxiety laden faces. We saw people
who had gone bald with administration of chemotherapy, people in wheelchairs
some with hopelessness written plain on their faces, people with tubes
extending out of their throats, people on stretchers just waiting to die. There
was a whole wing dedicated to pediatric oncology – children below the age of
10, some even in infancy, affected by cancer. It was too painful to see them
walk around knowing that some of them wouldn’t even live to be 20.
The oncologist there suggested radiation of the spine, lower back, and
right leg, as they were the most affected. Radiation kills the cancer cells in
the affected area of the bone, and is the only useful tool in cases of brain
and spinal cancer. Chemotherapy was out of the question. Dad was put on a hormone drug called Tabi/
Calutide, along with a monthly injection of Lupride Depot, and a bone
strengthening injection – Zometa or Zoledronic acid. Zometa cost Rs. 15,000/-
per injection. But by God’s grace, we were introduced to its Indian substitue
Zoletro/ Zobone of the same composition costing Rs. 2,000. It was guaranteed
protection against fractures due to the bone damaging effects of cancer.
There
was another type of radiotherapy we were told about, called Strontium therapy.
The difference between ordinary radiation and strontium therapy was that
radiotherapy using the latter could be pinpointed at the exact spot the cancer
was situated on in the bone. This promised a greater chance of bone renewal,
and guaranteed the killing off of 99% of the cancer cells in the affected
areas, as opposed to normal radiation which targeted the circumference of the assumed affected bone mass, exposed with
the help of scans and X-rays. But this was advised against as the side effects were
numerous.
And so began the daily hospital visits, being marked out for radiation,
lying on the radiation table hoping the next day would be better than this. For
a while the pain got worse. Dad was prescribed painkillers that didn’t help. He
had bouts of diarrhoea and nausea every morning, and lost nearly 5 kgs during
therapy. It hurt every time he got out of the wheelchair and lay down for
therapy, and every time he rose. I can still see his solemn face pinched in
pain, trying his best not to let the tears show, sinking into the pain,
allowing its black waves to wash over him.
My husband and I accompanied him to the hospital for these visits each
time. With each successive session, the pain seemed to reduce some. And by the
end of the therapy, dad was better than before. We noticed the old gleam in his
eye and even a slight spring in his stumbling step. Gradually his digestion
returned to normal and his pain was almost non-existent, except for the
occasional feeling of strain after being particularly active. The cancer demon
was asleep….for a while. Although we daily lived in fear of when and how it
would resurface.
Still, there was prayer, that mighty comfort of the hopeless. And we prayed
dad back to recovery slowly. He seemed to have accepted that he had to live
with cancer and continued with his daily routine. He could not climb stairs or
go for long walks of course, but he did make small trips to the neighbourhood
petty shop. He could not carry more than one kg weight, so he bought back light
stuff. He loved to surprise us with sweets like laddoos or candy after lunch.
He was advised not to travel long distances, and not to strain himself with
too much sitting. He had to lie down every few hours to rest his back. We drove
him during his monthly visits to a nearby clinic for the injections, and to the
hospital for follow-ups. A lab guy came over for monthly blood collection and
testing, and his PSA and blood count were closely monitored.
Things began improving after a while. Dad’s PSA level was dropping lower,
which was a good sign and showed that the cancer activity was minimal. His
haemoglobin levels increased, his immune system improved, he began gaining
weight, the familiar glow in his cheeks returned, and his sunken eyes once
again grew bright and hopeful. For a long while the good times rolled. Mom made
him his favourite dishes. He bought a car so it would be easier for him to
travel to church and get around. He began writing
letters about his experience to our relatives and friends, and sharing with
them about the mercy and love of God, the truth about Jesus Christ, and the
signs of the times. Old friends and family called and visited, and this
gladdened his heart.
Dad began the day with prayer. He prayed for our family, for all our dear
ones, his friends, ministers and ministries around the world; he prayed for
lost souls, for the sick, for the deprived, and for special petitions. And
ended his supplications with thanksgiving in faith. He had a love for spiritual
literature, so mom and I would visit the local ELS store and grab up the best buys
during their vacation sales. Dad would pour over these books and eagerly devour
them. He rejoiced in the written testimonies of people who had suffered
agonizing illnesses and had still stayed true to the Lord. He loved books about
doctrinal discourses and historical references to Bible facts, biographies of
well known Christian ministers, and even books that made you think about faith,
healing, love, and sorrow.
To those visiting our home, dad was a testimony of Christ, bearing his
suffering with fortitude and patience. He smiled when he told them he had
cancer, laughing away the horrors of his battles every night. And most of them
respected him for the quiet and dignified manner he bore his illness. And many
wondered at his faith and strength. And when they expressed their surprise at
it, he always gave all credit to the Lord.
“It’s not me, it’s God who keeps me
going.”, he used to say.
Birthdays and anniversaries came and went. Dad would open his gifts with
the wonder and joy of a child. His excitement was infectious; his booming
laughter contagious. He loved sweets, and mom would dutifully surprise him with
this or that sweet dish on special occasions.
Dad began to meditate more. He dedicated most of his time to Bible reading
and prayer. He would sit and share with us his discoveries and thoughts, some
new gems He’d uncovered in the Song of Solomon, or some rare treat of scripture
the Lord had revealed to Him from the Book of Psalms. And we listened as his
eyes sparkled with joy on telling us all.
Now underneath this blanket of routine and stolen time, was the ever
present uncertainty of life, the fear of having our angel snatched from us at
any given moment, the glaringly disturbing fact of mortality that haunted us,
even as we smiled and laughed the days away. It ate at us bit by bit, gnawed at
our optimism and faith, like a shadow following us in the twilight, or a cloud,
dark and heavy with rain, adding to the sultriness of the season.
A year had passed by like the flash of a camera. And before the lens had
snapped shut and opened again, it was 2010, and Dad’s latest blood test lay on
the table before us. Our trembling fingers laced the sheets, our eyes dark with
sorrow. His PSA stood at 500 + and his blood count had dropped by halves. The
cancer demon was back. And how would it go this time? Would the pain start up
again? Would Dad become invalid as so many of the men in the stout biographies
we’d read. Our minds could not hold the horror of our thoughts. And so we
stopped thinking altogether.
The annual full body scan was done and this revealed full skeletal
metastases, even on the skull. This meant that the cancer had ravaged Dad’s
whole skeleton frame and was eating slowly into his bone, rendering it weak and
brittle. It was like termites in the timber beams of old houses.
I had heard about something called Ozone therapy. In the advanced state of
cancer, Ozone treatment was used as rejuvenation therapy, to decrease pain,
renew the body’s immune system, and lend a certain amount of strength and
freshness to the sufferer’s organs. In cases of full skeletal metastases, the
administration of ozone through the blood could decrease the chances and speed
of the cancer cells infiltration into the blood stream, decrease pain, and
offer a state of over-all wellness for a while. We made some calls. The
treatment was available in Pune and Bangalore. We had family in Pune, and so
opted for a clinic there. The doctor there was known to friends of ours, and
dad could stay at his sister’s. So it was off to Pune with mom and dad. The
treatment cost 25k, and we were down to our last nickel with the flight tickets
believe it or not. Dad’s savings were almost all gone, what with bills for
radiation, medicines, injections, and the monthly trips to the clinic.
The treatment consisted of alternate ozone and Vitamin C administration.
Dad was started off on a nature cure diet which consisted of fresh fruits and
vegetables, especially those rich in Vitamins D and C. He was also put on
homeopathic pills for pain and haemoglobin increase, and spent his days in Pune
recuperating with freshly squeezed gooseberry juice and good books. As the
treatment ended, our friends from churches in Ahmednagar and Pune, Maharashtra
and one of Dad’s old pals came to visit. When the day to pay the bill came,
they joined together and footed it. Dad called and spoke to me and I could
almost see the tears in his eyes as he told me,
“It’s all paid for ba. God
provided”.
This was a laughable phrase to some. ‘God provided.’ They shook their heads
and rolled their eyes meaning, “It’s not God that provided. It’s Mr. and Mrs.
So and so.” But the funds kept coming from relatives and well meaning friends.
As the old saying goes, “What goes around comes around.” I’d like to think that
all the good turns dad had done in his life were coming back to him now in this
stage of helplessness and desperation- the little churches and ministers he had
helped, the old people he had served out of compassion, the friends he had
sheltered and loaned money to, the good deeds he had done, not out of necessity
or piety, but out of a heart of gold testifying to His true Christian faith.
My husband, mother-in-law, sister-in-law, and I, met up with dad and mom in
Pune. We went on to Mumbai with them where my uncle had arranged for our stay
in the home of one of his friends. I had had grand plans of taking dad along
with us to all the places we had loved to roam about together in Mumbai. But
dad was not what he had been before. And now I noticed, the lines around his
laughing eyes, the wrinkles on his once smooth brow, his shoulders drooping as
if from some heavy weight on his back, his voice tremulous, his palms pale and
white. And I came face to face with the fact that we were running out of time.
Once back in Coimbatore, the effects of the Ozone therapy lasted only a
couple of months. Dad was still on a nature cure diet. He was still taking his
homeopathic medication which eased the pain and stiffness in his joints some.
Mom’s kitchen was an ocean of health food – vegetable soups, sweet lime and
pomegranate juice, shredded carrot, tomatoes in curd, wheat grass and chicken
broth, ragi porridge, and hot lemon concoctions. And in spite of it all emerged
the dreaded face of our enemy once again.
The pain which had been much like a nagging uneasiness in the bones, had
now grown into a gnawing ache. The meds and juices seemed like naughty children
who were playing when they should have been doing their home work. So it was
off to the hospital again. Our doctor in Ramkrishna gave us 10 minutes of his
time. He looked dad over, did the routine examination, asked the routine
questions, and then discussing the fact that chemotherapy was not a viable
option in dad’s case, and radiation was not possible again, suggested surgery
again.
“But Doctor, surgery at this stage? Is it really useful?”
And then I saw
his hopeless gaze, and knew that he was throwing around words, gauging our
reactions, wondering how to gently leak the news to us. And then there were
those words, just like in the movies.
“I’m sorry, there’s nothing more we can
do.”
God! How I hated those words!
So we changed doctors, we changed hospitals. I went to another one called
Kuppuswamy Naidu Hospital well known for its cancer research. The oncologist
there went over the case and then suggested nuclear medicine that had just
passed the experimental stage. It was a radio isotope costing Rs. 10,000/- that
would be injected into the blood stream to help lessen the intensity of the
pain. The whole process took about 15 minutes, but had no guarantees. The
results greatly varied from person to person. For some there was no pain for
months, for others the effects lasted for days or hours, for still others –
there was no betterment. The injection could only be administered once in the
patient’s life, and came with no guarantees whatsoever. Still, it was worth a
shot. So we tried it. And it didn’t work.
By this time dad was started on blood transfusions as his blood count kept
slipping. His heamoglobin had recently been 8, then slipped to 7. We kept
admitting him in hospital for a day, searching for donors, driving over to the
local blood bank, paying Rs. 850 for one unit of AB+ packed blood cells booked
the previous day, then back to the hospital with a frozen pack in a plastic
bucket, mom talking dad through the day, reading to him with one eye on the
blood tube checking the speed of the flow, telling lame jokes that would make
him either laugh or wince, till the transfusion was over and we could go home.
We must have collected 30 of those buckets, I guess.
Dad still laughed. He still played chess and carrom with the next door
neighbour’s kids. He chatted on the phone for hours with old friends, revived
his dying hobbies of coin and stamp collecting, wrote letters of Christian
exhortation and admonition to all he knew, scribbled secrets in his diary, and
prayed fervently to his God.
Time passed. Dad wore a back belt and used hot water bag compresses for the
pain. His nightly companions were the Bible and his bottle of Tiger balm which
he kept applying wherever he had pain. Soon, all dad’s clothes smelt of balm.
His vests were stained with the ointment. His eyes were filled with tears as he
offered silent prayers to the Lord who had conquered sin and death.
Then our doctor called. He had a new oral chemotherapy drug, minus the
steroids used in usual chemotherapy. They could help control the cancer and
fight the pain but would decrease his blood count, which meant more blood
transfusions. So we went in for it. We bought the tablets. And with each
successive dose, dad’s pain grew less. And the side effects were minimal, so we
were a bit relieved. But his RBC count dropped alarmingly in the first month,
and we had to have two transfusions in the same month. In the second month of
treatment, dad had a lot of wretching and nausea, especially in the mornings.
We were told it was a side effect he just had to cope with.
But it had become harder for dad to cope, to deal with the illness that was
eating away at his self-confidence and independence, literally draining the
life blood out of him. The days were dark. Dad changed. He wasn’t able to
control his emotions most of the time. Little things angered him tremendously
like leaving the light on in the bathroom or yelling at the dog. When his
outbursts grew too much and we chided him, he broke down and sobbed. He was
prone to bouts of moodiness, violent fits on anger, and paranoia. This person
who had been my pillar of strength now brooded in the ugly depths of
depression. Sometimes he was deliberately mean or stubborn. At other times he
was a picture of patience and gratitude. It was unnatural – having to deal with
seeing my father, my role model, the guide of my youth, being torn in two this
way; having to face his outbursts and put downs for things as simple as helping
him pick something up, or not giving him my complete attention; And at other
times having to reconcile with the fact that his anger sprung from a deeper
hopeless sorrow, and had to be tolerated and soothed.
It was not always easy though. The smallest things could start him off. He
chose to misunderstand us when we assisted him or explained things to him. He
was irked by his own dependence on us. And his helplessness made him doubt our
motives. He felt that he was being ignored, or insulted, or spied on. The
disease that had coursed though his marrow now preyed on his mind. And we
watched, as slowly the man we loved turned into someone we did not even know.
Dad grew worse. His legs had swollen up, and he had problem urinating. His
blood count dropped frighteningly, and this caused an overall energy low. He
lost weight, his hair thinned, his eyes turned white, he suffered from
constipation, from loss of appetite, from continual stomach complaints and
nausea. We took him to a urologist for his urine complaint on the advice of his
oncologist, and he was catheterized. He had to wear a urine bag on his hip as
the tumour had expanded and was pressing on his urethra. The doctors all said
there was no more hope, and that it was better for dad to live out the rest of
his days in the comfort of his home than being shuttled from one hospital to
another.
Dad’s oncologist said there was no use giving dad another blood
transfusion. The disease had entered his blood and his blood count would keep
dropping. We would be keeping him alive indefinitely only to suffer the pain of
surrender.
Amazingly after his last scan, the doctor’s said that dad’s PSA had dropped
to below 20, his blood count stood at 9, and none of his internal organs had
been damaged by the cancer. This news was a relief of sorts.
Dad had suffered from bipolar depression, which made him intolerant to certain
drugs such as steroids and steroid compounds. Such drugs cause a condition
called ‘hypomania’ in people suffering from this condition. This is what had
happened in dad’s case. It could have been a drug administered as an
anti-allergen after a blood transfusion, or a drug present in the donor blood.
This was why dad went through extreme highs and lows of emotional disturbances.
At times he would be limitlessly energetic and stubborn, criticize others, and
fight to wash the dishes. At other times, he would turn silent, unresponsive to
affection, his eyes turned down in deepest sorrow.
Through it all though, he managed to perform his daily duties with
assistance of course, pray his daily prayer, read his Bible, tell us he loved
us every day, and express his regret for not doing enough for God’s service.
It was after this brief span of mania that a silent surrender came over
dad. He communed all the more with God while on his bed. He hadn’t energy for
much else. He became once again, the dad I used to know- the dad who encouraged
me to stand for what I believe, who taught me to ride my bike, shared my love
for cotton candy and chocolates; my counselor when I was in a rut, my fellow
conspirator when it came to eating out and escaping mom’s eye, my confidante
when I was indecisive, my leaning post when I was too tired to go on by myself.
The memories flooded back to him, and his wandering mind returned to the
present.
When the pain could not be controlled by medication anymore, the doctor
recommended morphine patches. We had to tape them onto the part of dad’s body
that hurt the most. However this gave him only temporary relief, and although
the effect was supposed to last for 72 hours as it said on the label, for dad,
it would wear off in a few hours time.
We even tried giving him morphine shots, but in one of his lucid moments
dad asked us not to do so anymore because he said although it helped take away
the pain, it also took away his reason and sensibilities, his ability to speak
clearly, and sometimes gave him hallucinations.
Those last days with dad were like looking at the path of a shooting star
in the sky. Dad told us he was going on, and that the only thing he regretted
leaving behind was us. And then he wept. I remember telling him it would be
better to be with the Lord, and that the Lord loved and wanted him so much more
than us.
Even till the last minute, even through his dark days of mindless
depression, dad did not give up his faith in God. Like the Job of old, he
maintained that his conscience was clear, and that he trusted that God knew
what he was doing. He never ceased to believe in the Lord’s unfailing love, or
His power to heal and redeem. And in His death as in life, dad left us a legacy
of faith that would not die, like a candle flickering in the winter chill but
never going out.
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